Children and young people’s continuing care

Some children and young people (up to the age of 18) have very complex health needs that may be a result of congenital conditions, long-term of life-limiting conditions, a disability, serious illness or injury.

Children with such complex needs may need additional health support to that which is routinely available from GP practices, hospitals or in the community through Universal Services.

If a child or young person meets the criteria for children and young people’s continuing care, the CCG will commission care at home or in external respite to support their health needs.

Assessment of needs and eligibility takes place in collaboration with other services such as education, social care and allied health professionals using a decision support tool and checklist. We are governed by the National Framework for Children and Young People’s Continuing Care.

If your child needs immediate support, for example because they need palliative care, there is a fast-track process to ensure that their care can be put in place as soon as possible.

Planning for transition into adult services (NHS continuing healthcare) begins at the age of 14 and assessment takes place in the months running up to a young person’s 18th birthday. Speak to a health or social care professional who works with you if you think your child should be assessed for NHS continuing care.

Get in touch

The CCG team can help if you have any further questions. Call 01323 466120, email esxccg.eastsussexchildrenscontinuingcare@nhs.net or send queries to:

Children and Young People’s Continuing Care Team
First Floor
Hampden Park Health Centre
12 Brodrick Close
Eastbourne
BN22 9NQ